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Merry Christmas, Unidentified Hacker.
posted by
Blanche.
on December 24, 2004 at 11:22 PM
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Unidentified Hacker.
You said you're an explorer, you're obviously an intrepid one, the inner mind is your own uncharted territory. If I have one piece of advice, from Dr. Frankl's book on concentration camp survivors, it's that finding a way out of a traumatic situation and finding hope and meaning when life seems to have neither is in doing the task that's in front of us, concentrating on that. The camp survivors had lives before they were interned, but the life they led after that, had meaning through suffering, though it was not the life they intended to lead.
He also survived that horrible situation by imagining himself lecturing on the events of the camp. He became a psychiatrist, invented a therapy called Logotherapy (Logos meaning "meaning" in this case), and counseled Holocaust survivors. I think Klara and RachelAnna both have a valid point to journal, if you can. If words become difficult, maybe painting, and prayer. There are people here who care for you,believe that: it's a powerful force.
posted by
Blanche.
on December 23, 2004 at 6:12 PM
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I agree with Rachel, UH. Her and I are obviously really impressed by your
strength throughout all this and your ability to cope with what most could not cope with at all.
Keep journaling as she said. Some day, some way, this may all be a great help to someone, and you will be responsible for improving the lives of others with this disease. I truly do feel this will happen.
You're so exceptional, it's unbelievable actually.
posted by
KlaraRoberts
on December 23, 2004 at 1:14 PM
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You have an awesome opportunity...
By the time a lot of people are diagnosed it's too late for them to even make this sort of observation. And here you are, journaling it. Maybe someday you'll be able to pass this "journal" along to your family and they'll pass it along to doctors and scientists who can learn from it. You just never know.
Also, it's something that runs in families. Maybe you'll help a future generation of your family deal with the diagnosis and symptoms. Just keep journaling. Someday, someone will learn something from it. Even, if it's just empathy.
You're doing so well, Mike. Just keep feeling your way through things... 
posted by
RachelAnna
on December 23, 2004 at 11:29 AM
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